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News & Events

Pārongo me ngā Takahanga

Register Now – 1st Annual National Information Meeting

  • Post published:August 19, 2025
  • Post category:CJDSNZ Meetings/Events/News

Information Meeting for CJD family members, those at increased risk and community carers. For all personally affected by prion disease (CJD) this meeting will provide information about the disease, the…

Continue ReadingRegister Now – 1st Annual National Information Meeting

Link to Prion Alliance blog: ‘All of the things’

  • Post published:June 12, 2025
  • Post category:Prion Alliance/Research

Link: All of the things From: prionalliance.org

Continue ReadingLink to Prion Alliance blog: ‘All of the things’

Link to blog: We have an open IND. What comes next?

  • Post published:April 17, 2025
  • Post category:News/Prion Alliance/Research

Link: We have an open IND. What comes next? From: cureffi.org

Continue ReadingLink to blog: We have an open IND. What comes next?

Save the Date – 1st Annual National Information Meeting

  • Post published:March 27, 2025
  • Post category:CJDSNZ Meetings/Events/News

Continue ReadingSave the Date – 1st Annual National Information Meeting

Link to post: ION717 trial fully enrolled

  • Post published:January 6, 2025
  • Post category:News/Prion Alliance/Research

Link: ION717 Trial fully Enrolled from: cureFFI.org

Continue ReadingLink to post: ION717 trial fully enrolled

Clinical Trial Update for Prion Diseases, December 2024

  • Post published:December 30, 2024
  • Post category:Ionis Pharmaceuticals/News/Research

December 2024 December 30th, 2024 - Enrolment is now complete for the Ionis Phase 1/2a clinical trial of ION717 called PrProfile for symptomatic prion disease patients. Updates will be provided as…

Continue ReadingClinical Trial Update for Prion Diseases, December 2024

Link to article (update from Prion Alliance): Divalent siRNA for prion disease

  • Post published:December 12, 2024
  • Post category:News/Prion Alliance/Research

Link: Divalent siRNA for prion disease Update from Prion Alliancevia biorxiv.org

Continue ReadingLink to article (update from Prion Alliance): Divalent siRNA for prion disease

International CJD Awareness Day awareness campaign on November 12th

  • Post published:November 7, 2024
  • Post category:Events/News

International CJD Awareness Day is November 12th Be a part of our awareness campaign #cjdawareness #priondiseaseawareness Post and share that you are 'Globally united for prion disease awareness' to your…

Continue ReadingInternational CJD Awareness Day awareness campaign on November 12th

Link to case study paper: Creutzfeldt–Jakob disease: From presentation to palliative care

  • Post published:October 26, 2024
  • Post category:News

Link: Creutzfeldt–Jakob disease: From presentation to palliative care Case Study by Debra Scott, Suzanne Solvyns, David Ralston, Mariese A Hely from Australian Journal of General PracticeVolume 53, Issue 10, October 2024

Continue ReadingLink to case study paper: Creutzfeldt–Jakob disease: From presentation to palliative care

Link to article: Brainwide silencing of prion protein by AAV-mediated delivery of an engineered compact epigenetic editor

  • Post published:June 29, 2024
  • Post category:Clinical trials general information/Research

Link: Brainwide silencing of prion protein by AAV-mediated delivery of an engineered compact epigenetic editor from science.org

Continue ReadingLink to article: Brainwide silencing of prion protein by AAV-mediated delivery of an engineered compact epigenetic editor
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News & Events

  • Register Now – 1st Annual National Information Meeting
  • Link to Prion Alliance blog: ‘All of the things’
  • Link to blog: We have an open IND. What comes next?
  • Save the Date – 1st Annual National Information Meeting
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