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News & Events

Pārongo me ngā Takahanga

Link to article – Maximising Impact: Professor Andy Hill’s Journey

  • Post published:April 3, 2024
  • Post category:Research

From Cosmos Studio https://cosmosmagazine.com/cosmos-studio/andy-hill-applied-research-impact-medicinal-science-journey

Continue ReadingLink to article – Maximising Impact: Professor Andy Hill’s Journey

Link to TED talk: My quest to cure prion disease — before it’s too late

  • Post published:April 2, 2024
  • Post category:Prion Alliance/Research

TED talk video: My quest to cure prion disease - before it’s too late  Sonia Vallabh

Continue ReadingLink to TED talk: My quest to cure prion disease — before it’s too late

Link to article: Foiling Deadly Prions

  • Post published:March 24, 2024
  • Post category:Clinical trials general information/News/Research

From science.org Link: Foiling Deadly Prions. Can the course of fatal prion diseases be changed by removing the protein before it goes bad? By Meredith Wadman

Continue ReadingLink to article: Foiling Deadly Prions

Video Presentation: ZF-transcription factors for Prion Disease

  • Post published:March 14, 2024
  • Post category:News/Research/Sangamo Therapeutics

“Engineered zinc finger protein transcription factors potently reduce brain PrP expression and extend survival in prion-infected mice” Bryan Zeitler et al.This is a post-conference recording of a presentation given at…

Continue ReadingVideo Presentation: ZF-transcription factors for Prion Disease

Link to FB: Medical Research Future Fund (MRFF) Early to Mid-Career Researchers scheme

  • Post published:March 11, 2024
  • Post category:News/Research

From: Optometry and Vision Sciences at University of Melbourne Facebook page  - Dr Laura Ellett, Dr Pei Ying Lee and Dr Helen Jiaofor to secure the Medical Research Future Fund (MRFF) Early to Mid-Career Researchers…

Continue ReadingLink to FB: Medical Research Future Fund (MRFF) Early to Mid-Career Researchers scheme

Link to Article – Researchers uncovering early markers of prion disease in the eye

  • Post published:February 14, 2024
  • Post category:News/Research

From The Flory: Link: Researchers uncovering early markers of prion disease in the eye

Continue ReadingLink to Article – Researchers uncovering early markers of prion disease in the eye

Article: Iatrogenic Alzheimer’s disease in recipients of cadaveric pituitary-derived growth hormone

  • Post published:January 31, 2024
  • Post category:News/Research

nature.com

Continue ReadingArticle: Iatrogenic Alzheimer’s disease in recipients of cadaveric pituitary-derived growth hormone

Video presentation: “Small Molecules to eliminate Prion protein”- Nina Oberbeck

  • Post published:December 6, 2023
  • Post category:Gate Bioscience/Research

Nina Oberbeck from Gate Bioscience at the 2023 CJD Conference, Melbourne Australia. https://youtu.be/G-MSuthL2W8

Continue ReadingVideo presentation: “Small Molecules to eliminate Prion protein”- Nina Oberbeck

Link to blog: Prion Alliance – First details of Ionis trial disclosed

  • Post published:December 6, 2023
  • Post category:News/Prion Alliance/Research

Post by Eric Minikel from Prion Alliance Link - First details of Ionis trial disclosed

Continue ReadingLink to blog: Prion Alliance – First details of Ionis trial disclosed

Understanding Clinical Trials

  • Post published:December 2, 2023
  • Post category:News/Research

Please find below links to some general information on clinical trials which may be helpful in the lead-up to the commencement of clinical trials for prion disease: U.S. Department of…

Continue ReadingUnderstanding Clinical Trials
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Contact Info

  • contactus@cjdsupport.org.nz
  • National Toll Free Helpline:0800 225531

News & Events

  • Save the Date – 1st Annual National Information Meeting
  • Link to post: ION717 trial fully enrolled
  • Clinical Trial Update for Prion Diseases, December 2024
  • Link to article (update from Prion Alliance): Divalent siRNA for prion disease
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