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Author: admin

This author has written 26 articles

Save the Date – 1st Annual National Information Meeting

  • Post published:March 27, 2025
  • Post category:CJDSNZ Meetings/Events/News

Continue ReadingSave the Date – 1st Annual National Information Meeting

Link to post: ION717 trial fully enrolled

  • Post published:January 6, 2025
  • Post category:News/Prion Alliance/Research

Link: ION717 Trial fully Enrolled from: cureFFI.org

Continue ReadingLink to post: ION717 trial fully enrolled

Clinical Trial Update for Prion Diseases, December 2024

  • Post published:December 30, 2024
  • Post category:Ionis Pharmaceuticals/News/Research

December 2024 December 30th, 2024 - Enrolment is now complete for the Ionis Phase 1/2a clinical trial of ION717 called PrProfile for symptomatic prion disease patients. Updates will be provided as…

Continue ReadingClinical Trial Update for Prion Diseases, December 2024

Link to article (update from Prion Alliance): Divalent siRNA for prion disease

  • Post published:December 12, 2024
  • Post category:News/Prion Alliance/Research

Link: Divalent siRNA for prion disease Update from Prion Alliancevia biorxiv.org

Continue ReadingLink to article (update from Prion Alliance): Divalent siRNA for prion disease

International CJD Awareness Day awareness campaign on November 12th

  • Post published:November 7, 2024
  • Post category:Events/News

International CJD Awareness Day is November 12th Be a part of our awareness campaign #cjdawareness #priondiseaseawareness Post and share that you are 'Globally united for prion disease awareness' to your…

Continue ReadingInternational CJD Awareness Day awareness campaign on November 12th

Link to case study paper: Creutzfeldt–Jakob disease: From presentation to palliative care

  • Post published:October 26, 2024
  • Post category:News

Link: Creutzfeldt–Jakob disease: From presentation to palliative care Case Study by Debra Scott, Suzanne Solvyns, David Ralston, Mariese A Hely from Australian Journal of General PracticeVolume 53, Issue 10, October 2024

Continue ReadingLink to case study paper: Creutzfeldt–Jakob disease: From presentation to palliative care

Link to article: Brainwide silencing of prion protein by AAV-mediated delivery of an engineered compact epigenetic editor

  • Post published:June 29, 2024
  • Post category:Clinical trials general information/Research

Link: Brainwide silencing of prion protein by AAV-mediated delivery of an engineered compact epigenetic editor from science.org

Continue ReadingLink to article: Brainwide silencing of prion protein by AAV-mediated delivery of an engineered compact epigenetic editor

Link to article: ‘Epigenome editor’ silences gene that causes deadly brain disorders

  • Post published:June 28, 2024
  • Post category:Clinical trials general information/News/Research

Link: ‘Epigenome editor’ silences gene that causes deadly brain disorders by Gemma Conroy from nature.com

Continue ReadingLink to article: ‘Epigenome editor’ silences gene that causes deadly brain disorders

About Gate Bioscience

  • Post published:June 27, 2024
  • Post category:Gate Bioscience/Research

Gate Bioscience is creating a new category of medicines called Molecular Gates. Our therapeutics are small molecules that selectively eliminate harmful extracellular proteins at their origin, inside the cell. We…

Continue ReadingAbout Gate Bioscience

Link to blog: Why the ION717 trial is paused

  • Post published:April 14, 2024
  • Post category:News/Prion Alliance/Research

Below is a link to Erik Minikel's blog sharing his perspective on the Ionis Community Statement regarding the recruiting pause of the Prion Disease clinical trial. Link - Why the ION717…

Continue ReadingLink to blog: Why the ION717 trial is paused
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News & Events

  • Save the Date – 1st Annual National Information Meeting
  • Link to post: ION717 trial fully enrolled
  • Clinical Trial Update for Prion Diseases, December 2024
  • Link to article (update from Prion Alliance): Divalent siRNA for prion disease
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